IBD resources

There are an abundance of resources available to you to access, we have listed some of these below: 


Crohn's & Colitis UK - are the UK’s leading charity for Crohn’s and Colitis and they have over 50 pages of information to help inform anyone affected IBD, including friends, family, medical professionals and even employers.   

Ileostomy Association UK - Ileostomy and Internal Pouch Association, known as IA, is a registered charity supporting people living with an ileostomy or internal pouch, their families, friends and carers.

Patients on Intravenous & Nasogastic Nutrition Therapy - are an independent, not-for-profit membership charity, providing support and understanding to those adapting to life on home artificial nutrition.

Nutrition tips - Inflammatory Bowel Disease (IBD) is a term used for two specific and separate diseases: Crohn's disease and ulcerative colitis. Nutritional recommendations are different for each disease and for each individual patient.

Travel advice and IBD - IBD Passport is a website that aims to provide comprehensive, practical and reliable information on all aspects of travelling with Crohn's Disease or Ulcerative Colitis (Inflammatory Bowel Disease).

IBD standards - The IBD Standards say what high-quality care should look like at every point of a patient’s journey – from first symptoms, to diagnosis, treatment, and ongoing care.

Peterborough City Hospital IBD Patient Panel - Facebook Page

Peterborough City Hospital IBD Patient Panel - Twitter Page

Crohns and Colitis UK have an abundance of publications that you can access on their website. They look at topics such as: 
  • Employment & IBD
  • Fatigue & IBD
  • Mental Health and Wellbeing
  • and much more..

You can find all of this information here

The IBD Patient Panel have created a number of PowerPoint presentations that are delivered at various events they hold throughout the year. You can take a look at them here: 

 

Being diagnosed with Inflammatory Bowel disease ( eg Crohn’s, Ulcerative colitis, colitis) can be a lot to take in. You probably have many questions and concerns. It is normal to have these feelings but there is help. 

What should I do if my symptoms worsen whilst waiting for me first appointment?

  • Firstly speak to your GP to check you have been referred. Inform them  If your symptoms are worsening and they can check your referral and suggest a management/treatment plan.
  • Contact the IBD advice line (Peterborough - 01733 673876 or Hinchingbrooke - 01480 363521) or email the team if you are chasing a procedure (please note this is not an emergency line/email)
  • for urgent queries contact your GP or 111
  • In case of life threatening emergency, contact 999

 The IBD patient panel asked people with IBD what tips they would give that they think would have been  most helpful when they were first diagnosed. You can discover these tips here.