Paediatric Rheumatology information

Web: www.ccaa.org.uk

Phone: 01242 511250

Run by a group of people who, through personal experiences, have a passionate interest in helping support children with JIA and their families

· Information about JIA

· Family support weekends

· Local groups (connect with families in your local area)

· Section for newly diagnosed families

· Award badges for children

www.versusarthritis.org

Phone 0300 790 0400

Information helpline: 0800 5200 520

 

A community providing support for people with arthritis across the UK. They also support research into arthritis and treatments.

· Information about JIA and medicines

· Activities for young people aged 11-18

· Arthritis tracker app for young people on complementary therapies and alternative treatments

· Online community for young people and families

Web: www.jia.org.uk

Phone: 0845 458 3969

 

As part of the National Rheumatoid Arthritis Society, they provide information and services for children with JIA and their families

· Information about research and drug trials, medicines, emotions and mental health, exams

· Bullying, education,work, bernefits and transition

· Range of events for children and families in England

· Children and families share experiences of JIA

Web: www.adolescent-rheumatology.uk

Supported by Versus Arthritis, University College London Hospital, and Great Ormond Street Hospital, this virtual centre tries to involve young people in research.

· Information about JIA, Lupus and myositis and their treatments

· Videos of young people giving tips and advice

· Advice for parents, teachers, and friends

· Videos by health professionals

· Opportunity to get involved in research

Web: www.oliviasvision.org

Information, support, and advice for anyone affected by uveitis. Subjects include:

· Information about uveitis and current treatment options

· Personal stories

· Latest research news