Paediatric Rheumatology Information
Where to look for information on Juvenile idiopathic arthritis (JIA) and related conditions
A guide for young people on where to look for information.
Information on the internet is not always reliable.
Please try to use websites you can trust rather than using a search engine.
CCAA- Kids with Arthritis
Phone: 01242 511250
Run by a group of people who, through personal experiences, have a passionate interest in helping support children with JIA and their families
· Information about JIA
· Family support weekends
· Local groups (connect with families in your local area)
· Section for newly diagnosed families
· Award badges for children
Phone 0300 790 0400
Information helpline: 0800 5200 520
A community providing support for people with arthritis across the UK. They also support research into arthritis and treatments.
· Information about JIA and medicines
· Activities for young people aged 11-18
· Arthritis tracker app for young people on complementary therapies and alternative treatments
· Online community for young people and families
JIA at NRAS
Phone: 0845 458 3969
As part of the National Rheumatoid Arthritis Society, they provide information and services for children with JIA and their families
· Information about research and drug trials, medicines, emotions and mental health, exams
· Bullying, education,work, bernefits and transition
· Range of events for children and families in England
· Children and families share experiences of JIA
Centre for Adolescent Rheumatology
Supported by Versus Arthritis, University College London Hospital, and Great Ormond Street Hospital, this virtual centre tries to involve young people in research.
· Information about JIA, Lupus and myositis and their treatments
· Videos of young people giving tips and advice
· Advice for parents, teachers, and friends
· Videos by health professionals
· Opportunity to get involved in research
Information, support, and advice for anyone affected by uveitis. Subjects include:
· Information about uveitis and current treatment options
· Personal stories
· Latest research news