Our IBD Service

As the demand for biologic medication is increasing, fitting people in for infusions is becoming challenging. Please could everyone try and keep their appointments for infusions, as changing appointments at short notice is not always possible and may cause a delay to your infusions.

For people taking sub cut biologic medications:

It really helps your care if you track dates for repeat prescriptions. Prior to us being able to prescribe your biologic medication we need to have checked a recent blood test. Once you are down to one month worth of treatment, you should get your blood tests done. You can do this via your GP or leave a message with the Advice Line 01733 673876 to request blood test letters well in advance of requesting repeat medications. When we have checked your bloods your prescription is sent to the pharmacy and can take 14 days to be clinically checked before being sent to the home care provider to arrange a delivery.

If you are late having your blood test done, the timescales may mean your delivery is delayed and therefore you would have a break in treatment.

The Ambulatory Care Unit (Peterborough City) and Jasmine Ward (Hinchingbrooke) is where the team give biologic medication infusions and iron infusions, alternatively you may be asked to come to the unit/ward to allow the team to assess your condition.

We ask you to be prompt for your treatment, please also allow extra time after your appointment. The gastroenterology secretaries make the appointments for your infusion times. We ask you to give priority to these appointments as it is extremely hard to cater for every one. 

When you arrive in the unit/ward the nurse will go through a check list with you before your treatment. If they have any concerns they will contact a member of our IBD team. 

Ambulatory Care Unit (ACU)

Patients attending ACU will be allocated a nurse on arrival to the unit and will be taken to sit in a room either on their own or with another patient to be given their infusion. The infusion can last between 30 minutes and 2 hours and some patients (especially new ones) might be asked to stay up to 2 hours after their appointment to monitor observations.

Location: towards the back of PCH following signs for car park F. There is disabled parking outside the unit and within car park F itself. The unit is situated right next to the car park.

Opening Times: 8am - 8pm

Hot drinks are available throughout the day. Refreshments are available if required but we encourage patients to bring food with them if they are to be here for a prolonged period of time.

Toilet facilities near treatment rooms.

NHS WiFi available - we allow patient communication devices. 

What is the IBD Registry?

The IBD Registry collects health data from NHS hospitals and analyses this information to help improve services for people with inflammatory bowel disease (IBD). It also supports new research into these conditions.

If you have IBD, which includes Crohn’s disease, ulcerative colitis and other forms of IBD, you can join the Registry to agree to your data being used to support this valuable resource.

What data do they collect?

The IBD Registry can collect information about your diagnosis and treatment from your hospital IBD team, and from you directly. For example, they might ask you to complete an online survey once or twice a year. To sign up to the Registry, you will need to provide some personal details including your name, NHS number and date of birth. This is so they can make sure you are eligible to join the Registry, and your hospital can identify you before sharing any data with us. The Registry will ask what type of IBD you have, and how you would like to be contacted.

How do they use my data?

When you join the IBD Registry, you can tell them how you want them to use your data. Your information will join data from thousands of other people with IBD, which they can analyse to find out how treatment and care for people with IBD could be improved. You will also have the option to agree to your data being used for research, and to tell them if you want to be contacted about new studies that are relevant to you and you may want to take part in. This can make it easier for researchers to recruit the participants they need. 

Is my data safe?

The Registry meet strict NHS requirements for data security and ensure that any data about you is transferred to us safely. It is then held within secure electronic databases.

The data they hold is de-identified before any analysis or research can take place. This means they remove data which could identify you, such as your name or NHS number, and replace it with codes. This helps to protect your identity.

How do I sign up? 

To find out more, join the IBD Registry online: Information for patients - UK IBD Registry